Saturday, February 9, 2013

Heart Webinar-- Noonan Syndrome and The Heart

Last Tuesday I had to opportunity to listen to this Webinar on Rasopathies (Noonan Syndrome) and the Heart put on by the Rasopathies Foundation.  Dr. Bruce Gelb did an amazing job explaining heart issues found in Noonan Syndrome and other Rasopathies.

Go watch the Video and learn about the heart issues that Miss Becca had and remember while watching that she is one of the survivors of the most severe infants with Congestive Heart Failure from her Hypertrophic Cardiomyopathy before age 6 months he talked about. Becca also has Pulmonary Stenosis and a huge ASD which were operated on at age 9 months through open heart surgery to remove her Pulmonary Valve and close her ASD.

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