The ABC's of Living with My Noonan Syndrome by Becca Yurcek
The ABC's of Living with My Noonan Syndrome
by Becca Yurcek Anxiety Bruising and Bleeding Contractures Drinking--- It hurts and I choke and Dr. Sheirlie lectures me. Eating and Esophagus-- It hurts and it gets stuck. Failing-- Schools and some Doctors don't get it. Gagging-- gagging and wretching that hurts my chest and ribs Heart Racing and Headaches-- which I wish would go away Intense Pain Joint Pain Keeping Weight Up Challenge Lymphedema Is painful and keeps me sitting my feet up Migraines Nissen falling apart and food gets stuck on top of it Osteoporosis Pain Questions no one can answer Respiratory issues
Sleeping-- too much or have trouble sleeping
Teeth I wish I could smile because my teeth are so awlful
Ultrasound on my elbows and hip.
Vitamins for my anemia, folate, Vitamin B12, C and D deficiencies.
Walking I can't, I need my chair
Xanax for my anxiety
Yo Yo, the ups and downs of my days
Zofran for my nausea and wretching. My favorite Medicine.